By Milne
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Additional info for The Heart of Listening
Example text
1 9 6 T h e C D C has d e v e l o p e d u n i q u e identifiers for race and ethnicity. T h e C D C data c o l l e c t i o n and r e p o r t i n g system i s s t a n d a r d i z e d and i n c l u d e s data e l e m e n t s that d e s c r i b e a u n i q u e identifier c o d e set for race and e t h n i c i t y informa¬ tion and p r o v i d e s g u i d a n c e for r e c o r d i n g and e x c h a n g i n g this type of i n f o r m a t i o n . T h e u n i q u e identifier c o d e set c o m b i n e s current federal s t a n d a r d s for classifying data based on m i n i m u m race and e t h n i c i t y c a t e g o r i e s as defined by the O M B and a m o r e d e t a i l e d set of race and e t h n i c i t y categories from the U .
G e n e t i c data s h o w that no matter h o w racial g r o u p s are defined, t w o p e o p l e from the s a m e racial g r o u p are as different as t w o p e o p l e from any t w o different racial g r o u p s . A l t h o u g h c a n c e r d e a t h rates are d e c l i n i n g n a t i o n a l l y , e t h n i c g r o u p s and m e d i c a l l y u n d e r s e r v e d p o p u l a t i o n s h a v e a h i g h e r i n c i d e n c e and l o w e r survival rate. Racial differences in t h e surgical t r e a t m e n t of b l a c k s as com¬ pared w i t h w h i t e s h a v e been d o c u m e n t e d .
In t h e last 15 y e a r s , such p r e d i c t i v e tests h a v e b e e n devel¬ o p e d for m o r e t h a n 2 0 0 o f t h e 4 0 0 0 d i s e a s e s t h o u g h t t o b e c a u s e d b y i n h e r i t e d g e n e m u t a t i o n s . T h e result has b e e n earlier m o n i t o r i n g , p r e v e n t i v e t r e a t m e n t s , and i n s o m e c a s e s , p l a n n i n g for l o n g - t e r m care. H o w e v e r , g e n e t e s t i n g is n o t w i t h o u t its difficulties. For e x a m p l e , the presence of a particular m u t a t i o n does n o t m e a n t h a t i l l n e s s i s i n e v i t a b l e , m a k i n g the interpreta¬ t i o n of test results a h i g h l y c o m p l e x task.
The Heart of Listening by Milne
by Robert
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